Information Connections – website for parents of children with developmental disabilities and chronic diseases
Connect with Information Connections
By Nalini Mahajan
Director, Medical Library
Marionjoy Rehabilitation Hospital
Information Connections is a website for parents of children with developmental disabilities and chronic diseases with a special focus on Autism, Cerebral Palsy, Attention Deficit Hyperactivity Disorder, Down Syndrome, and Traumatic Brain Injury. The informative website was developed and launched by the Marianjoy Medical Library with funding from the National Network of Library of Medicine, Greater Midwest Region (NN/LM GMR) and is sponsored by Marianjoy Rehabilitation Hospital. It is accessible to anyone from anywhere and it is free.
Since its initial launch in April 2011, InformationConnections.org has helped thousands of families seeking help on these topics. Website usage and feedback in our first year has been exceptional.
We would love to promote our Web site to everyone who could benefit from this wonderful resource and would appreciate any help from you. Please spread the word around; like us on Facebook, follow us on Twitter, feel free to blog about us, and place a link to us on your website. Our goal is to have 500 friends by the end of 2012. Once we reach the magic number of 500 friends, 3 winners be selected randomly and each will receive a $25.00 gift certificate.
This entry was posted on Wednesday, August 29th, 2012 at 12:45 pm and is filed under Consumer Health, Funding, News from the Region, Outreach. You can follow any responses to this entry through the RSS 2.0 feed. You can skip to the end and leave a response. Pinging is currently not allowed.
Hamilton, ON (August 16, 2011) — A successful new rehabilitation approach to treating children with cerebral palsy puts its focus on where a child lives and plays, not just improving the child’s balance, posture and movement skills.
Called a “context-focused intervention”, McMaster University and the University of Alberta researchers report in a new study this approach is just as beneficial as traditional child-focused therapy, offering parents an additional treatment option for their child.
The McMaster study, in conjunction with researchers at the University of Alberta’s Faculty of Rehabilitation Medicine and Alberta Health Services in Calgary, is the first randomized trial to examine the effects of therapy focused on changing a child’s task or environment, not the child. It appeared in the July issue of the medical journal Developmental Medicine and Child Neurology.
Context-focused and child-focused therapies were evaluated in a randomized controlled trial of 128 children with cerebral palsy ranging in age from one year to almost six year old. The children, from 19 different rehabilitation centres in Ontario and Alberta, received one of the two approaches for six months. Therapy was provided by occupational therapists and physical therapists. Between assessments at six and nine months, they returned to their regular therapy schedule.
Researchers found that while both groups improved significantly over the study, there were “no significant differences in daily functioning” between the two treatment groups, reported lead author Mary Law, professor in McMaster’s School of Rehabilitation Science and co-founder of the university’s CanChild Centre for Childhood Disability Research.
Cerebral palsy is caused by damage in the brain before or just after birth that results in problems with muscle tone and movement, and impacts ability to perform everyday activities. More than 50,000 Canadians have cerebral palsy, which occurs in about two of 1,000 babies.
During the study, parents in both groups received general information and education about their child’s disability as well as specific strategies to practice at home.
In the child-focused approach, therapists identified the underlying impairment – tone, posture, range of motion – and provided therapy to improve the child’s skills and abilities…..
- Using Play and Technology for Therapy (mentalflowers.wordpress.com)
- HealthWatch: Cerebral Palsy (newyork.cbslocal.com)
- Smartphones, Tablets Provide Therapy for Cerebral Palsy, Autism (blogs.forbes.com)