Health and Medical News and Resources

General interest items edited by Janice Flahiff

[Reblog]Let Patients Help: A New Book Authored by e-Patient Dave deBronkart | ScienceRoll

Let Patients Help: A New Book Authored by e-Patient Dave deBronkart | ScienceRoll.

From the 20 March 2013 post at Science Roll

Posted by Dr. Bertalan Meskó in e-patientHealth 2.0My BookshelfWeb 2.0

I was very glad to see the new book authored by e-Patient Dave deBronkart, whose thoughts I describe to medical students as a part of the official curriculum at Semmelweis Medical School, just became available.

Medical professionals must let patients help and become equal partners in the treatment! A must-read book!

Concise reasons, tips & methods for making patient engagement effective.
Third book by e-Patient Dave, cancer beater, blogger, internationally known keynote speaker and advocate for patient engagement; co-founder and past co-chair of the Society for Participatory Medicine. Profile:



March 21, 2013 Posted by | Consumer Health, Educational Resources (Elementary School/High School), health care, Health Education (General Public), Professional Health Care Resources | , , , , , | Leave a comment

Can an App a Day Keep the Doctor Away? (2010 closing interactive panel of the National Conference on Health Communication, Marketing, and Media)

This 68 minute video touches on aspects of digital health and wellness in its broadest sense.
(The actual discussions start around the 10 minute mark after introductions, overviews, etc)


Jay Bernhardt, PhD

MPH (Moderator)

James Andrews;

“e-Patient Dave” deBronkart

Bradford W. Hesse, PhD

Dana Lewis

This discussion of  application and use of computers, information, and communication technology to all aspects of health includes

  • Health promotion and prevention, disease prevention
  • Healthcare and self-care and disease management
  • The systems which underlie all this work
  • e-health, m-health, ihealth

Discussion questions…

  •  Are we in a health care technology revolution or evolution? (with themes as patient empowerment, health care organization & structures)
    Are tools as email
  • Are patients empowered? Do they know they can ask questions and do they? And will this cause health institutions to adapt to empowered patients?
  • How is social media enabling advocacy? (as Twitter)
  • 39  billion is predicted to be spent on digital health, how will this affect the digital health revolution/evolution?
  • How can the current information centered paradigm (for accounting and billing systems) be reconciled with the evolving patient centered paradigm (for empowerment)
  • Search engine optimization in health, is it possible? relationship to social media as Facebook
  • Twitter and Facebook searches beginning to outnumber search engines, what does this mean for health?
  • “Infomercials” by panelists
    • Trust in physicians is rising because (not in spite of) internet.. physicians are explaining Web-based material patients are bringing in
      HINTS – Health Information National Trends Survey (an open source survey from the US National Cancer Institute)
      call for items from 2010-2014
    • Patient Protection and Affordable Care Act is changing what is being done in health care because prevention is a focus of this law. This act is driving the use of technologies so people can be better informed about their health and make better decisions.
      Informatics for Consumer Health ” focuses on a coordination of health information, technology, and health care delivery that empowers providers to manage care and increases the ability of consumers to gain mastery over their own health. This may be accomplished by promoting the use of information technology and communication between health care providers and their patients to share vital medical information across clinical settings in timely and reliable ways, and utilize electronic tools to achieve these objectives.”
    • Everywhere – a company which helps clients manage social media, build social media content and communities, and  integrate a social media campaign into an existing communications strategy.
      • Participation is the new marketing because the audience, target populations are creating content and are  more empowered; transparency and authenticity are now hallmarks of organizations
      • UStream to create a television station (Jane Fonda conference had 26,000 people around the world exercising at the same time)
      • [at 44:05] Five Tips on Building Community (Using Social Media)
        • Be humble (you’re a participant, not an owner
        •  Learn to use the new telephone
        • Less selling and more engaging
        • Not what you say but what they say that counts
        •  Be interesting (don’t be afraid to take chances with the new social media)
    • Social Media and Health Care is happening everywhere, HIPPA does not hamper this
      • Surgery videos can raise awareness thru included commentaries on prevention, treatment options, etc
      • hashtags in Twitter are useful for conversing, getting questions answered, sharing, crowdsourcing as #hscm
    • e-Patient Dave
      • patients are the most underutilized resource in our healthcare system
      • patient community as treatment option source
      • white paper 62 minutes
      • lethal lag time of 2-5 years
      • AHRQ..what kinds of appt, questions to ask

February 20, 2012 Posted by | health care | , , , | Leave a comment


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