Health and Medical News and Resources

General interest items edited by Janice Flahiff

Meet e-patient Dave – a voice of patient engagement (and related resources)

https://ted.com/talks/view/id/1181

e-patient Dave de Bronkart was successfully treated for kidney cancer at a very late stage. He credits his recovery to using the Internet to find trusted medical information as well as to get advice from patients via support groups.

His video Let Patients Help outlines how and why patients should empower themselves.
Some video highlights

  • Patients are presently the most underutilized part of the health team
  • The e-patient movement is at least partly based on hippie ideals of self-reliance and self-care (think Whole Earth Catalog)
  • e-patients are empowered, engaged, equipped and enabled through finding information to use in discussions regarding treatment options with their health care providers
  • Support groups often are useful in providing information not available at other sites (as which doctors specialize in certain treatments)
  • Patients not only need quality information, but also access to their raw medical data

Related Resources

How to evaluate medical and health information

Great starting places for quality health and medical information

  • MedlinePlus (US National Library of Medicine/National Institutes of Health)
    Links to information on over 700 diseases/conditions, drugs & supplements, videos & tools (as health calculators, anatomy     videos, directories (as Find an Eye Doctor), and links to organizations
  •  But Wait, There’s More!

Many academic and medical institutions offer at least some reference services to the general public.  Be sure to ask for a reference librarian. He or she not only has a master’s degree in Library Science, but often additional related education in health related areas.

Online Health Communities/Support Groups

  • Self-Help Group SourceBook Online
    A starting point for finding every type of national, international, model and online self-help support group that is available starting point for finding every type of national, international, model and online self-help support group that is available. (MentalHelp.net)
  • MedlinePlus 
    Search with a phrase as “support groups” cancer or select a Health topic and select an organization.
  • Medpedia communities
    This site allows people with common health interests to share information and communicate. Anyone may create a community of interest and anyone may join.Medpedia is an open platform connecting people and information to advance medicine. Users include health care professionals, health care organizations, expert lay persons, students, and scientists.
  • MedHelp International
         This online health community which not only provides health information but helps patients actively manage their health through online personal health records andMedhelp trackers (iphone friendly options).
    The People option allows one to search by a disease or condition to find related information (including symptoms, treatments, resources). One can also view postings and blogs by other members and interact with them.
    Medical experts helps users by answering questions in Ask-an-Expert forums, participating in conversations with members in free live health chats, and sharing their knowledge and the latest news in blogs
  • Mayo Clinic Online Community is ” free and is open to anyone, whether you have been a patient at Mayo Clinic or not. It includes content from various Mayo Clinic blogs,health and medical videos from Mayo’s YouTube channel and links to news articlesabout Mayo Clinic research and treatment advances. It also features a discussion forum where members can connect with others who have similar interests or concerns.”

July 6, 2011 Posted by | Consumer Health, Educational Resources (High School/Early College(, Finding Aids/Directories, Health Education (General Public), Librarian Resources | , , , , , , , , | Leave a comment

Electronic medical records improve quality of care in resource-limited countries, study suggests

Electronic medical records improve quality of care in resource-limited countries, study suggests

From the March 18 2011 Science Daily news item

ScienceDaily (Mar. 18, 2011) — A new study [Abstract***], conducted by researchers from the Regenstrief Institute and the schools of medicine at Indiana University and Moi University, is one of the first to explore and demonstrate the impact of electronic record systems on quality of medical care in a developing country….

…This work is particularly significant because of the many medical errors that occur in settings where too few skilled health-care providers deal with a large patient population with critical illnesses. In developed countries, patients with HIV are often seen by infectious disease specialists for their HIV care. In contrast, a large number of HIV-positive patients in resource-limited countries like Kenya are taken care of by clinical officers whose level of training is similar to that of nurse practitioners. The combination of overworked staff with limited training, increasingly busy clinics, the challenges of providing chronic disease management, and the difficulty of keeping up-to-date often results in suboptimal patient care.

***For suggestions on how to get this article for free or at low cost click here

Related articles

Towards electronic healthcare centred on the patient (Science Daily)

A vast computer based glossary of healthcare terms culled from so-called e-health tools, medical news sites, telemedicine applications, home care-management systems, internet-based public health records, and even health-oriented and medical blogs could help improve the relationship between patients and healthcare workers, according to new research.

Abstract is here

For suggestions on how to get this article for free or at low cost, click here


March 22, 2011 Posted by | Medical and Health Research News | , , , , , , , , | Leave a comment

   

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