[Journal Article] The Emergent Discipline of Health Web Science -with related links and articles

Larger image –>http://www.flickr.com/photos/40726922@N07/4702688723

Came across this article through an online professional health community.  It describes how the Internet is changing approaches to healthcare issues.  Current evidence shows Web sites can empower professional and lay alike through informational Web pages, social media, health record annotations and linkages for exploration and analysis. However, these applications can be built on to better serve the health care related needs of all.  The Web can be better” engineered for health research, clinical research, and clinical practice. In addition, it is desirable to support consumers who utilize the Web for gathering information about health and well-being and to elucidate approaches to providing social support to both patients and caregivers. Finally, there is the motivation to improve both the effectiveness and efficiency of health care.” The paper goes on to outline channelling further efforts in these areas.

• Social networks
• Patient Engagement Through Citizen Science and Crowdsourcing
• Sensors, Smart Technology and Expert Patients
• “Big Data”, Semantic, and Other Integration Technologies
• Rapid, Automated, Contextualized Knowledge Discovery and Application

From the full text of the article

Abstract

The transformative power of the Internet on all aspects of daily life, including health care, has been widely recognized both in the scientific literature and in public discourse. Viewed through the various lenses of diverse academic disciplines, these transformations reveal opportunities realized, the promise of future advances, and even potential problems created by the penetration of the World Wide Web for both individuals and for society at large. Discussions about the clinical and health research implications of the widespread adoption of information technologies, including the Internet, have been subsumed under the disciplinary label of Medicine 2.0. More recently, however, multi-disciplinary research has emerged that is focused on the achievement and promise of the Web itself, as it relates to healthcare issues. In this paper, we explore and interrogate the contributions of the burgeoning field of Web Science in relation to health maintenance, health care, and health policy. From this, we introduce Health Web Science as a subdiscipline of Web Science, distinct from but overlapping with Medicine 2.0. This paper builds on the presentations and subsequent interdisciplinary dialogue that developed among Web-oriented investigators present at the 2012 Medicine 2.0 Conference in Boston, Massachusetts.

Read the entire article here

Related links

• Health Web Science Lab – “A Hippocratic Revolution in Medicine”

The Health WebScience Lab is a multi-disciplinary research initiative between Moray College UHI, NHS Grampian, HIE OpenFinder and Sitekit Solutions Ltd based in the Highlands of Scotland committed to improving health locally, nationally and internationally.

This initiative will lead, connect and collaborate on research in the emerging discipline of WebScience and Healthcare to create communities which take responsibility for their own wellbeing and self-care. This will be achieved through the application of information and other communication technologies via the internet across a whole range of functions that affect health care thereby stimulating novel research between health care professionals, the community at large and industry.

• Health Web Science Twitter account

studies ” the effects of the interaction of healthcare with the web, and of the web with healthcare” and how one can be effectively harnessed to change the other

• 3rd International Conference on Web Science (Program with many links to presentations)

Related articles

• Participatory Medicine 2.0 (projecthealthdesign.typepad.com)
• HealthCamp Boston 2012: Brainstorming the Future of Health Care (healthblawg.typepad.com)
• Semantic Web (pantypeblog.wordpress.com)
• Cooperation in Health: Mapping Collaborative Networks on the Web (plosone.org)
• Text Analytics and Semantic Processing Fuel New Web Paradigm (arnoldit.com)
• What is WebScience? (mymindbursts.com)
• Medicine 2.0’13: 6th World Congress on Social Media, Mobile Apps and Web 2.0 in Health, Medicine, and Biomedical Research (walterfarah.net)

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[Reblog]Let Patients Help: A New Book Authored by e-Patient Dave deBronkart | ScienceRoll

Let Patients Help: A New Book Authored by e-Patient Dave deBronkart | ScienceRoll.

From the 20 March 2013 post at Science Roll

Posted by Dr. Bertalan Meskó in e-patient, Health 2.0, My Bookshelf, Web 2.0. 
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I was very glad to see the new book authored by e-Patient Dave deBronkart, whose thoughts I describe to medical students as a part of the official curriculum at Semmelweis Medical School, just became available.

Medical professionals must let patients help and become equal partners in the treatment! A must-read book!

Concise reasons, tips & methods for making patient engagement effective.
Third book by e-Patient Dave, cancer beater, blogger, internationally known keynote speaker and advocate for patient engagement; co-founder and past co-chair of the Society for Participatory Medicine. Profile:http://www.ePatientDave.com/about-dave

Related articles

• Let Patients Help: A New Book Authored by e-Patient Dave deBronkart (scienceroll.com)
• Project HealthDesign’s new video series: Conversations with e-PatientDave (projecthealthdesign.typepad.com)
• Part 1: Value of social media in healthcare is already outlined – just not realized (himss.org)
• The Multidimensional Role of Social Media in Healthcare (gumption.typepad.com)
• First Post: A Video About Patients Involvement in Their Own Healthcare (healthitoutlook.wordpress.com)
• The 7 Habits of Highly Patient Centric Providers (forbes.com)
• I’m an e-patient: equipped, enabled, empowered, engaged (worldofdtcmarketing.com)

 

Top 10 Youth Health 2.0 articles of 2011

Top 10 Youth Health 2.0 articles of 2011

From the 26 December Youth Health post by Dr. Kishan Kariippanon (@yhpo)

1. #9 cool public health and social media articles

2. Is technology to blame in cybersafety?

3. Stanford Medicine 2.0 Conference 2011 – The Report Card (Guest blog by Prajesh C)

4. iPhone Apps for STI/HIV Prevention

5. Mark Scott (ABC) on social media leadership

6. Social media and Indigenous culture

7. Youth Health 2011 Sydney conference presentation

8. Sexual health iPhone Apps

9. Wanted: a Social Media Expert?! (Guest Blog by Kate Nelson)

10. A simple QR code evaluation

Related articles

• Top 10 Youth Health 2.0 articles of 2011 (youthhealth20.com)
• Bringing the social media revolution to healthcare – Lee Aase and the 7th HARC Forum (jflahiff.wordpress.com)
• Health 2.0 Code-a-thon sends IT innovators scrambling (medcitynews.com)
• At Health 2.0, apps help you sleep, breathe better (video) (zdnet.com)
• What is the future of Health 2.0 in Europe? (scienceroll.com)
• David Harlow’s Health 2.0 vlog (healthblawg.typepad.com)

Kent Bottles Private Views: Health Hackers & Citizen Scientists Shake Up Medical Research

	Click on figure to enlarge Copy of Figure 1 describing the health care model of Health 2.0
	Emerging Patient-Driven Health Care Models: An Examination of Health Social Networks, Consumer Personalized Medicine and Quantified Self-Tracking, Int. J. Environ. Res. Public Health 2009, 6, 492-525; doi:10.3390/ijerph6020492Author – Swan M

Kent Bottles Private Views: Health Hackers & Citizen Scientists Shake Up Medical Research

From the 5 December 2011 blog item by Dr. Bottles

Whether you call it Health 2.0, Medicine 2.0, or e-Health 2.0, the Internet is changing medicine in ways that challenge the status quo. This article explores how a group of amateurs who call themselves “health hackers” and “citizen scientists” are trying to use the Internet to connect with other patients, run experiments, and conduct clinical trials on their own diseases.

Dr. Gunther Eysenbach states “Medicine 2.0 applications, services and tools are Web-based services for health care consumers, caregivers, patients, health professionals, and biomedical researchers, that use Web 2.0 technologies as well as semantic web and virtual reality tools, to enable and facilitate specifically social networking, participation, apomediation, collaboration, and openness within and between these user groups.” One review examined 46 different definitions of Health 2.0, and Eysenbach’s definition does not emphasize a key component of the concept:amateurs can use these new Internet tools to do work that in the past was only done by professionals. (1)

 …

The tension between the traditional approach to medical research and patient-initiated research can only be resolved by cooperation and two-way communication between the two groups. The Mayo Clinic and PXE examples clearly show that both groups can benefit by meaningful and respectful partnership. The AIDS and ALS examples demonstrate that patients with few options and new Internet tools will continue to push the traditional research community to be open to new ideas, new approaches, and new possibilities. Gilles Frydman, founder of the Association of Cancer Online Resources, has stated, “Better-informed people are more willing to participate in the advancement of science. Those patients taking Gleevec do not consider themselves guinea pigs. They are recipients of experimental medicine.” (8)

Read the entire blog item

Related articles

• The rise of citizen scientists and patient initiated research (jflahiff.wordpress.com)
• The rise of citizen scientists and patient initiated research (kevinmd.com)

The rise of citizen scientists and patient initiated research

Emerging Patient-Driven Health Care Models: An Examination of Health Social Networks, Consumer Personalized Medicine and Quantified Self-Tracking, Int. J. Environ. Res. Public Health 2009, 6, 492-525; doi:10.3390/ijerph6020492

by KENT BOTTLES, MD in an article at KevinMD.com

Whether you call it Health 2.0, Medicine 2.0, or e-Health 2.0, the Internet is changing medicine in ways that challenge the status quo. This article explores how a group of amateurs who call themselves “health hackers” and “citizen scientists” are trying to use the Internet to connect with other patients, run experiments, and conduct clinical trials on their own diseases.

Dr. Gunther Eysenbach states “Medicine 2.0 applications, services and tools are Web-based services for health care consumers, caregivers, patients, health professionals, and biomedical researchers, that use Web 2.0 technologies as well as semantic web and virtual reality tools, to enable and facilitate specifically social networking, participation, apomediation, collaboration, and openness within and between these user groups.” One review examined 46 different definitions of Health 2.0, and Eysenbach’s definition does not emphasize a key component of the concept: amateurs can use these new Internet tools to do work that in the past was only done by professionals….

…

Charles Blanke, MD, Director of Gastrointestinal Oncology at the Oregon Cancer Institute summarizes the advantages and disadvantages of their patient-initiated approach:

This is powerful and compelling work! I remain incredibly impressed by the data-coordinating abilities of the Life Raft personnel. I see the major purpose of this sort of data as hypothesis generating. Unfortunately, it cannot be free of bias and thus cannot stand by itself, but it certainly can point investigators and the Company in the right direction and let us know what we need to be looking at more closely. Thus, its importance cannot be overstated….

,,,The tension between the traditional approach to medical research and patient-initiated research can only be resolved by cooperation and two-way communication between the two groups. The Mayo Clinic and PXE examples clearly show that both groups can benefit by meaningful and respectful partnership. The AIDS and ALS examples demonstrate that patients with few options and new Internet tools will continue to push the traditional research community to be open to new ideas, new approaches, and new possibilities. Gilles Frydman, founder of the Association of Cancer Online Resources, has stated, “Better-informed people are more willing to participate in the advancement of science. Those patients taking Gleevec do not consider themselves guinea pigs. They are recipients of experimental medicine.”…

Related articles

• DocGreet Steadily Grows as the Leader in Health 2.0 and Medical Social Media (prweb.com)
• Connect with Project HealthDesign at Health 2.0 (projecthealthdesign.typepad.com)
• Reflections on the Medicine 2.0 conference at Stanford #med2 (medicineandtechnology.com)
• Health IT and Patient Safety: Building Safer Systems for Better Care (jflahiff.wordpress.com)
• During the Fifth Annual Health 2.0 Conference, Dr. James Mault of HealthyCircles will Showcase Innovative Technology that will Help Transform Health Care (prweb.com)

A complete guide to planning a social media presence for healthcare

by HOWARD LUKS, MD , the complete Dec 2011 article is at KevinMD.com

The world of healthcare is inherently siloed,  tethered,  fragmented and prone to poor communication and collaboration.  Today, healthcare workers solve their problems via traditional methods that are often costly, inefficient, nor timely.  Increasingly, more savvy healthcare workers are looking outside the system to digital media and communities for answers, but are challenged with uncertainty over concepts of usefulness, practicality, bandwidth issues, “ROI” and privacy concerns.

Establishing a digital presence is rapidly becoming a necessity for healthcare professionals, medical practices, and institutions.  Many have recognized this fact, yet many more have not.

At its heart, digital media is about people, it is about relationships, and it is about communication.  A social media presence is about educating, engaging and growing your audience, improving outcomes, compliance and potentially the bottom line of your practice….

The medium long article includes summaries of overall use of social media, how to plan for and engage in social media and online reputation tips.

Medicine and Social Media Links from Science Roll

The Web site Science Roll is published by ” Bertalan Meskó,MD. He  graduated from the University of Debrecen, Medical School and Health Science Center in 2009 and started PhD in the field of personalized genomics. He is the founder of Webicina.com, a free service curating medical social media resources in 17 languages. He thinks medical education and communication between physicians and patients will be revolutionized with the tools and services of web 2.0.”

The Medicine and Social Media page includes links in the following areas

• The first Internet in Medicine University Credit Course:
• Education and RSS
• Wikis, medical databases
• Medical search engines, tools
• Medical communities
• Podcast, Vidoecast
• Open access and journalism
• Sites, links, news, and reviews
• Online docs and reputations

 

Mobile Health Slideshow and Infographics (with related resources)

From the November 28th 2011 Science Roll blog item by Dr. Bertalan Mesko

Since around 2009, it has been quite clear that mobile phones would not only change the way we check healthcare information online, but the way we do anything online so relevant statistics and analyses are crucial in order to be able to analyze the situation and draw useful conclusions. I’ve recently come across a great presentation focusing on mobile health by Daniel Hooker, health librarian.

And Andrew Spong shared an infographics by Manhattan Research that presents the state of mobile health. 85% of people use social media for health-related reasons on mobiles. Click on the image for larger version.

Related Resources 

• Health Apps (free and low cost) at jmflahiff.wordpress.com

Related articles

• Mobile Health (Infographic) (worldofdtcmarketing.com)
• FDA Cleared Way for Health Monitoring Mobile Health Apps (knowledgetree12.wordpress.com)
• Mobile health has huge potential in the Middle East, industry study says (nfcdata.com)
• How mobile health can help child abuse victims (kevinmd.com)
• Call for mobile phone health warnings despite ‘inconclusive’ evidence (telegraph.co.uk)
• How Text Messages Could Change Global Healthcare (jflahiff.wordpress.com)