Webicina – free access to curated online medical resources in social media for patients and medical professionals in over 15 languages.
Webicina provides curated medical social media resources in over 80 medical topics in over 17 languages.
It is now also available through a free iPhone application and also a free Android application
The topics for medical professionals are constantly being added. At this time they include oncology, bioinformatics, dermatology, emergency medicine, genetics, nutrition, public health, and surgery.
The topics or empowered patients are also constantly being added. At this time they include allergy, sleep, diabetes, fitness, stem cells, weight loss, and transplantation.
Each topic includes Web sites in the following areas, from carefully chosen reputable sites
- News and Information
- Blogs (websites with regular entries commonly organized in a reverse chronological order)
- Podcasts (Audio files which one can download for immediate or future listening)
- Community sites (including related Facebook groups and other forums)
- Twitter and Friendfeed
- Mobile phones (apps and software for smartphones)
- search engines (more focused than Google, Yahoo, Bing…)
- Clinical resources (medical professional section only — includes clinical cases and imaging)
August 1, 2011 Posted by Janice Flahiff | Consumer Health, Educational Resources (High School/Early College(, Finding Aids/Directories, Health Education (General Public), Librarian Resources, Medical and Health Research News, Professional Health Care Resources | apps, Facebook, health_apps, health_information, mobile_apps, social_media | Leave a comment
Mayo Clinic currently uses social media tools as YouTube, Facebook, and Twitter.
Blogs include Podcast Blog , News Blog, and Sharing Mayo Clinic blog for patients and employees to share their Mayo Clinic stories.
The Mayo Clinic Community is free and open to all, whether or not one is or was a Mayo Clinic patient.
This online community includes content from various Mayo Clinic blogs,health and medical videos from Mayo’s YouTube channel and links to news articlesabout Mayo Clinic research and treatment advances. It also features a discussion forum where members can connect with others who have similar interests or concerns.
Additional Online Health Communities/Support Groups
- Self-Help Group SourceBook Online
A starting point for finding every type of national, international, model and online self-help support group that is available starting point for finding every type of national, international, model and online self-help support group that is available. (MentalHelp.net)
Search with a phrase as “support groups” cancer or select a Health topic and select an organization.
- Medpedia communities
This site allows people with common health interests to share information and communicate. Anyone may create a community of interest and anyone may join.Medpedia is an open platform connecting people and information to advance medicine. Users include health care professionals, health care organizations, expert lay persons, students, and scientists.
- MedHelp International
This online health community which not only provides health information but helps patients actively manage their health through online personal health records andMedhelp trackers (iphone friendly options).
The People option allows one to search by a disease or condition to find related information (including symptoms, treatments, resources). One can also view postings and blogs by other members and interact with them.
Medical experts helps users by answering questions in Ask-an-Expert forums, participating in conversations with members in free live health chats, and sharing their knowledge and the latest news in blogs
- Mayo Clinic launches social network (tech.mn)
- First Google+. Now Mayo Clinic launches a (healthcare) Facebook (medcitynews.com)
- Consumers Seek Healthcare Advice On Facebook, Docs Absent (informationweek.com)
There’s been much discussion around the pharmaceutical industry’s use of social media, especially Facebook. Is it worth the risk for pharma to engage in this uncontrolled space? Will consumers really “like” a medication in a place where they’re more likely to play Farmville? And what options does pharma have considering Facebook’s recently-announced policy changes?…
[The post goes on to say there are at least 150 pharmaceutical related Facebook pages , including those by corporations, brands (those dedicated to a single presription drug), unbranded pages (usually centered around a condition as diabetes), and those including games and/or applications.]
[The article goes on to discuss the legalities and Facebook policies concerning comments at pharma Facebook pages.]
Facebook changes the game for pharma
“Starting today, Facebook will no longer allow admins of new pharma pages to disable commenting on the content their page shares with people on Facebook,” Facebook told pharmas in a May 17 email posted by Intouch Solutions on its blog. “Pages that currently have commenting disabled will no longer have this entitlement after August 15th. Subject to Facebook’s approval, branded pages solely dedicated to a prescription drug may (continue to) have commenting functionality removed.”
For companies that decide they still want to be on Facebook, there are a number of options:
1. 24/7 monitoring and moderation or a “community management” model
2. Moderation applications that place a temporary “hold” on comments prior to publication
3. Branded Facebook pages, where Facebook will still allow comment disabling
4. Personal representation or company “spokesperson”
6. Word filters
- Facebook to Let Pharma Disable Comments on Some Pages (clickz.com)
- Facebook Tells Pharma Brands They Must Allow Comments (scienceroll.com)
- Facebook Tells Pharma They Must Enable Comments – They Don’t Need Facebook for Sales, That Takes Care of Itself (ducknetweb.blogspot.com)
- Pharma and Social Media (biomed20.ucsf.edu)
- Possible Facebook Commenting Change Worries Pharma Marketers (clickz.com)
- Open access guideline for pharma about using social media: V2 (scienceroll.com)
- A Death Knell For Social Media and Pharma? (biojobblog.com)
- What impact will e-patients have on how healthcare is delivered: My interview on Pharmaphorum (scienceroll.com)
- Facebook No Longer Blocking Comments for (Most) Pharmaceutical Pages (insidefacebook.com)
- How Big Pharma Sucked Billions From Asthma Sufferers (huffingtonpost.com)
- Open-Access Social Media Guide for Pharma: Want to join? | Science … (sciencereportnow.com)
- Positive and negative examples of pharma using social media (scienceroll.com)
- Social Media in Pharma Summit starts today (medicineandtechnology.com)
There have been some articles and blog entries lately focusing on whether Google+ could be used in medicine or pharma. I’ve been trying to use it more actively in the past couple of days and it’s still a question for me to figure out whether I should separate my professional Facebook and Google+ activities. A few comments from fellow bloggers:
“Google launched a beta version of its own social network just a couple of days ago, Google+. While many news reports over the past day or so suggest that Google+ offers some great features, most also suggest that the network is probably no reason for people to abandon their FaceBook page as an alternative.
However, could Google+ offer a FaceBook alternative for pharma companies? “…..
Google+ is a social media site (currently in beta & for invited users only) similar to Facebook.
An introductory video, review….
HowTo.gov is a website to help government workers who manage or support
a government customer service channel (call center, web site, etc.)
deliver a better customer experience to citizens.
Includes info on web content and design, communicating using social
media, managing call centers, writing content, etc.
While social media sites like Facebook, Twitter and YouTube bring benefits to children and teenagers, such as helping them develop communication and technical skills, they can also expose them to danger and risk, such as cyberbullying and depression, according to a new report written by American pediatricians.
The report, which appears in the April issue of Pediatrics, [free full text] the peer-reviewed, scientific journal of the American Academy of Pediatrics (AAP), says doctors are in an ideal position to encourage children to use social media in a healthy way, and to help parents and families understand and engage with their use of social media while also monitoring for potential problems….
…The report does much to stress the benefits of social media, such as developing communication skills, facilitating social interaction and improving technical competence. Other benefits include helping young people find opportunities to link up with community activity like volunteering, and helping them attain a sense of identity…
…A Common Sense Media Poll in 2009 found that more than half of American teenagers log onto their favorite social media site at least once a day, while 22% do so at least ten times a day.
75% of teenagers now own cellphones, with 54% of them using them for texting, 24% for instant messaging, and 25% for social media access.
The growth of social media has been so rapid and their presence in children’s everyday life is now so pervasive, that:
“For some teens and tweens, social media is the primary way they interact socially, rather than at the mall or a friend’s house,” report co-author Dr Gwenn O’Keeffe told the press.
“Parents need to understand these technologies so they can relate to their children’s online world – and comfortably parent in that world,” urged O’Keeffe.
O’Keeffe and colleagues point out that a significant part of young people’s social and emotional development now occurs while they are using the Internet or on their cellphones.
- Today’s Kids Face ‘Facebook Depression’ (livescience.com)
- How Marketers Are Using Social Media to Grow (othersidegroup.com)
- NLM Director’s Comments Transcript: Kids & Social Media 05/02/2011 (US National Library of Medicine)
Social Media: A Guide for Researchers
The International Center for Guidance Studies at the University of Derby has produced a social media guide to help researchers understand the range of social media tools. The 48-page guide has links to a variety of resources including academic and research blogs and collaboration tools. Also included are case studies profiling ten researchers and their use of social media.
One of the most important things that researchers do is to ﬁnd, use and disseminate information, and social media offers a range of tools which can facilitate this. The guide discusses the use of social media for research and academic purposes and will not be examining the many other uses that social media is put to across society.
Social media can change the way in which you undertake research, and can also open up new forms of communication and dissemination. It has the power to enable researchers to engage in a wide range of dissemination in a highly efﬁcient way.
Web materials 1: Links and resources
Audio and video tools
Blogging and Microblogging tools
Examples of academic and research blogs
Social networking services
Location based tools
Social bookmarking, news and social citation tools
Research and writing collaboration tools
Presentation sharing tools
Project management, meeting and collaboration tools
Information management tools
You can access the full list of the above resources here, or download below.
Web materials 2: Researcher case studies
The guide is rooted in the practical experience of its authors and that of the ten social media users that we interviewed as part of the project. You can read their individual case studies below:
- Andrew Coverdale (PhD student, Education)
- Anna Croft (Lecturer, Organic Chemistry)
- Alexander Davenport (Research Assistant, Hemato-oncology)
- Elena Golovuskina (PhD student, Education)
- Pat Heslop (Professor, Molecular Cytogenetics and Cell biology)
- Chris Jobling (Lecturer, Engineering)
- Constantina Katsari (Lecturer, Ancient History)
- Cameron Neylon (Senior Scientist, Biophysics)
- Alun Salt (Archaeoastronomist)
- Ruth Filery Travis (PhD, Archaeology)
- Terry Wassall (Principal Teaching Fellow, Sociology)
- Social media and research workflow (downes.ca)
- Learn More About Social Media (blogs.constantcontact.com)
In the latest issue of the JAMA the results of a survey is published. The authors did a search on physicians using twitter. They extracted the public profile pages of the physicians using twitter with 500 or more followers between May 1 and May 31, 2010. They analyzed the tweets of these professionals.
Of the 5156 tweets analyzed, 49% (2543) were health or medical related, 21% (1082) were personal communications, 14% (703) were retweets, and 58% (2965) contained links. Seventy-three tweets (1%) recommended a medical product or proprietary service, 634 (12%) were self-promotional, and 31 (1%) were related to medical education.
But what is somewhat worrying were their findings of potential patient privacy violations andconflicts of interest. Thirty-eight tweets (0.7%) represented potential patient privacy violations, of the 27 users responsible for these privacy violations 25 were identifiable by full name on the profile, by photo or link to their personal website. Twelve tweets were about a product they were selling on their Web site or repeatedly promoting specific health products, 10 were statements about treatments not supported by the official guidelines.
Using social media by physicians does broadcast useful medical information, unprofessional content in tweets by physicians is rare.
Chretien KC, Azar J, & Kind T (2011). Physicians on twitter. JAMA : the journal of the American Medical Association, 305 (6), 566-8 PMID: 21304081 ***
For suggestions on how to get the full text of this article (letter to the editor) for free or at low cost, click here
February 16, 2011 Posted by Janice Flahiff | Medical and Health Research News | doctors, doctor_patient_relations, online_communities, physician-patient_relations, physicians, privacy, social_media, social_networking, tweets, Twitter | Leave a comment
Before a forecast storm hits, today’s FEMA can monitor local weather reports and Tweets to advise the public in the affected area. On Tuesday, for example, the agency issued a message about a winter storm likely to hit Oklahoma, New Mexico and North Texas through Wednesday. The agency instructed its followers to be sure to follow the affected state’s emergency management offices: “Another #winterstorm for OK, north TX & New Mexico tonight/tmrw. Prepare at http://go.usa.gov/akw & follow @okem @txdps @NMDHSEM.”
Fugate said his agency is careful to rely only on official information, such as forecasts from the National Weather Service and links from official emergency management agencies. “It’s really important I don’t try to pose as a weather service,” he said.
The agency also uses social media to anticipate what a state might need to prepare for a predicted disaster. For example, as Hurricane Earl moved up the East Coast in September 2010, Fugate could see by monitoring Twitter that tourists on North Carolina’s Outer Banks were evacuating, but many long-term residents were adamant about staying put. That gave the agency a heads-up that there would be people left on the barrier islands, and search and rescue plans were readied.
During an event, FEMA looks for what people are saying on Twitter by tracking the service’s hash tags***, which an eventual consensus of users assigns to mark a given event. During the major snow and ice storm that moved across the United States in early February, the most commonly used hash tag was #snomg……
Definition: The # symbol, called a hashtag, is used to mark keywords or topics in a Tweet. It was created organically by Twitter users as a way to categorize messages.
Hashtags: helping you find interesting Tweets
- People use the hashtag symbol # before relevant keywords in their Tweet to categorize those Tweets to show more easily in Twitter Search.
- Clicking on a hashtagged word in any message shows you all other Tweets in that category.
- Hashtags can occur anywhere in the Tweet.
- Hashtagged words that become very popular are often Trending Topics.
Example: Below, @VegNews added the hashtag before the word “vegan” in their message. The word is now a link to search results for all Tweets containing “#vegan” in the message.
- If Tweet with a hashtag on a public account, anyone who does a search for that hashtag may find your Tweet.
- Don’t #spam #with #hashtags. Don’t over-tag a single Tweet. (Best practicesrecommend using no more than 3 hashtags per Tweet.)
- Use hashtags only on Tweets relevant to the topic.
Further Discovery and Reading
- The third party site hashtag.org offers an overview of popular hashtags used on Twitter. Find out about trends, look at small, pretty graphs, and search to see if the hashtags of your fantasies exist.
- You may also want to read this article about hashtags, which appeared in The New Yorker magazine.
- Twitter and natural disasters (eurekalert.org)
- NLM Director’s Comments Transcript: Rising Expectations for Emergency Response? 04/18/2011
- FEMA Administrator on GIS and Social Media for Emergency Management (geodatapolicy.wordpress.com)
- FEMA chief says economy adds to storm challenges (seattletimes.nwsource.com)
- Social Media Tends To Be A One-Way Communication For FEMA (techdailydose.nationaljournal.com)
- “FEMA’s Twitter Followers Can Get Arkansas Disaster Recovery Updates” and related posts (fema.gov)
- Social Rescue: Facebook, Twitter Change Disaster Response (time.com)
- How Social Media Is Changing Disaster Response (time.com)
- Mobile Apps, Facebook, Twitter Help Public Become Part Of Disaster Preparedness And Response, Not ‘Mere Bystanders’ (Medical News Today July 2011)
“Social media tools like Facebook, Twitter and Foursquare may be an important key to improving the public health system’s ability to prepare for, respond to, and recover from disasters, according to a New England Journal of Medicine“Perspective” article from the Perelman School of Medicine at the University of Pennsylvania to be published this week. From earthquakes to oil spills or other industrial accidents to weather-related events like heat waves and flooding, the authors suggest that harnessing crowd-sourcing technologies and electronic communications tools will set the stage to handle emergencies in a quicker, more coordinated, effective way. …”
February 10, 2011 Posted by Janice Flahiff | Consumer Safety | @hashtags, Federal_Emergency_Management_Agency, FEMA, National_Weather_Service, social_media, Twitter, Twitter_hashtags | Leave a comment
This blog presents a sampling of health and medical news and resources for all. Selected articles and resources will hopefully be of general interest but will also encourage further reading through posted references and other links. Currently I am focusing on public health, basic and applied research and very broadly on disease and healthy lifestyle topics.
Several times a month I will post items on international and global health issues. My Peace Corps Liberia experience (1980-81) has formed me as a global citizen in many ways and has challenged me to think of health and other topics in a more holistic manner. (For those wishing to see pictures of a 2009 Friends of Liberia service trip to this West African country, please visit www.fol.org. My photo album is included).
This blog is a companion site to my Health and Medical News and Resources Web site with…
- Informational sites and guides
- Links to help from others (as health care providers and support groups)
- Interactive tools (as health calculators and apps)
- Select related news sites and blogs
My professional work experience and education includes over 10 years experience as a medical librarian and a Master’s in Library Science. In my most recent position I enjoyed contributing to our library’s blog, performing in depth literature searches, and collaborating with faculty, staff, students, and the general public.
While I will never be be able to keep up with the universe of current health/medical news,
I subscribe to the following to glean entries for this blog
- Medical News Today, a MediLexicon International daily online health news product
- MedLib-L ,a medical librarian discussion list
- Science Daily – Your source for the latest research news
- A Consumer and Patient Health (CAPHIS) discussion list , by a section of the Medical Library Association (MLA)
- MedlinePlus email updates from the US National Institutes of Health
- Public Health Partners from the National Library of Medicine
- US Agency for Healthcare Research and Quality (AHRQ) electronic newsletter with updates on the agency’s efforts to “improve the quality, safety, efficiency, and effectiveness of health care for all Americans”
- Krafty (Medical)Librarian,” a collection of writings from Michelle Kraft on items of interest to medical librarians. She tends to write on technology and medical libraries but she also writes about things in general on librarianship, medicine and health”
- Research Buzz, “news about search engines, digital archives, online museums, databases, and other Internet information collections since 1998″
- Library Journal – Breaking News
- librarian.net by librarian consultant Jessamyn West
- The Cornflower, the blog of the National Network of Libraries of Medicine Greater Midwest Region
- DocuTicker with “abstracts from ‘grey literature’: PDF reports published by government agencies, think tanks, NGOs, research institutes and other public interest groups”
- PubMed New and Noteworthy, updates from the largest indexer of biomedical journals in the world
- Free Government Information, a “place for initiating dialogue and building consensus among the various players (libraries, government agencies, non-profit organizations, researchers, journalists, etc.) who have a stake in the preservation of and perpetual free access to government information”
- Scout Report, a “weekly publication offering a selection of new and newly discovered Internet resources of interest to researchers and educators”
- Latest from Brookings Institute, independent research reports on social and political issues
- KevinMD.com -”Social Media’s leading physician voice”
- EurekAlert-Medicine and Health
- A New Order for CPR, named CAB (Compression-Airway- Breathing)
- [Reblog] JAMA papers raise questions about FDA drug and device approval
- Birth Control Pills Online Pamphlet
- 10 persistent cancer myths debunked
- [Reblog] (USDA) Pulled in Two Directions
- Unpublished trial data 'violates an ethical obligation' to study participants, say researchers
- Medical Research Article: Lies, Damned Lies, and Medical Science
- Do Cell Phones Make Us Less Socially Minded?
- Free Online Health Statistics Courses
- A vascular surgeon explains why he ditched statins for more meat and less sugar, lowering his cholesterol in the process