Health and Medical News and Resources

General interest items edited by Janice Flahiff

Rare Diseases Clinical Research Network

The Rare Diseases Clinical Research Network (RDCRN) was created so that experts on many different rare diseases could communicate and work more closely with each other. RDCRN is working on researching and treating rare diseases. For more information about the goals of RDCRN, click here.

Currently, the RDCRN is made of 19 different groups or consortia. Each consortia focuses on a single disorder or disease, as rare kidney stones and mitochondrial diseases

Presently, members of RDCRN are looking for volunteers to participate in over 100 clinical trials.

Other rare disease resources include
**MedlinePlus Rare Disease Web Site
**Genetic and Rare Diseases Information Center (Office of Rare Diseases, National Human Genome Research Institute)
**Rare Disease Information (New Zealand Organizasation for Rare Disorders) Aimed to professionals, but useful to many members of the general public
**Rare Diseases Resource Page

September 23, 2010 - Posted by | Consumer Health |

No comments yet.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s