From: Finding and Using Health Statistics - http://www.nlm.nih.gov/nichsr/usestats/index.html
(tutorial from…National Information Center on Health Services Research and Health Care Technology (NICHSR) )
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Page 26 of 40
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Using the World Wide Web to best advantage requires mastery over new types of searching that go beyond those found in printed resources.
The Internet also offers new online catalogs of health statistics material. They work like library catalogs but are focused on statistical materials. [One such resource is the Gateway to Data and Statistics of the Department of Health and Human Services.]
Search engines such as Google allow users to search the words within each website and use Boolean logic to find material. However, these automated facilities are not fine tuned to take advantage of the particular structure of health statistics. Because they are based on the experience of other users, search engines require an effort to focus in on particular health statistics series. They are extremely valuable in finding particular references once you know what you are looking for.
Agencies that create health statistics have invested in the creation of portals that present their data. A good first step is to focus on these for relevant material.
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Searching within a Report
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Page 27 of 40
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At other times, the researcher’s question might lead to a search within one of these resources. Before the advent of the Internet, these kinds of searches were extremely difficult, required an in depth knowledge of the sources and usually involved contacting experts at the statistical offices where material originated. Frequently, they were the only ones who could reliably guide users to the place where they could find their answer. Because the demand for their help greatly exceeded their capacity, users often bypassed useful information and settled for the material available in standard publications. This material was sometimes not as pertinent or accurate as available information that was difficult to find.
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Internet and Electronic Reports Open New Strategies
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The Internet has now made it possible to discover much of this information because it added access points and made it possible to search within sources. Electronic reports that can either be downloaded from the Internet or obtained in other ways also allow for detailed searching that was not previously available.
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Expand the search to web based material
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Page 28 of 40
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The previous examples show that traditional library methods can provide starting points in a search for health statistics publications. To be successful, the researcher must draw on material in a number of places and diverse formats.
Consequently, searchers might try to:
- Use printed reports and books as the starting point rather than the end of a search. For example, you might start with a standard compilation of health statistics—such as Health, United States. See Example for a detailed discussion of how to use Health US
- Focus on key Internet portals that provide an array of resources and finding aids. [A number of these are introduced in this course. You can find a list of them on the HSRR NLM website.]
- Use both search engines—such as Google or Google Scholar–and online catalogs of health statistics material—such as DHHS’ Gateway to Data and Statistics.
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Page 29 of 40
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Specialized libraries and organizations have created web portals that make it easier to find and use health statistics. These offer key access points to health statistics.
To use them the researcher:
- Locates a website that lists relevant key sites that point to places where material is organized.
- Takes advantage of the natural structure of health statistics material. Here are some steps for this.
- Looks for material on the websites of agencies that create it. For example, many users will start at the NCHS website.
- Focuses on health statistics projects or surveys that address the particular topics of interest. This broad “Table of Contents” approach is a good first step but almost never finds all of the relevant material.
- Extends the search to other material created by the agencies that managed the most relevant studies.
- Searches can be materially enhanced by using specialized catalogs of the material. And
- Digs beyond the apparent content of a work—represented in its title—to find material deep in its tables.
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The next pages describe three examples of portals that cover health statistics.
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Additional starting points
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Several other portals have been built. Go here for a list of some of them.
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Going to the Original Sources
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Page 31 of 40
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One way to find health statistics is to identify the appropriate source—the organization or agency that is likely to collect and report the information and visit their website or look for their publications.
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Organizations and Health Statistics
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Health statistics are the product of organizations that can conduct large scale data collection, compilation, standardization and analysis. While individual scholars and analysts make important contributions through their work, they largely rely on these institutions to collect the data and make them available.
One important approach to finding health statistics is to visit the web sites maintained by the agencies that produce them. This section introduces the producers and provides links to their main web pages.
A list of key sites can be found here
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How to find the major agencies producing health statistics
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Page 32 of 40
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It is advantageous to approach your search for agency sources by following their organizational structure.
Key sources are located on the websites of:
- The US Department of Health and Human Services
- Other Federal Agencies
- State and Local government health agencies
- Private companies
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Page 33 of 40
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If you are looking for material within the mission of a particular agency or private organization, looking at their statistics or data website can help you find it:
- The site may have the material the agency creates.
- It may link to other material and these links could identify more material
- Many agency websites also provide bibliographic resources.
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Federal Government Agencies
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Agencies within and outside of the Department of Health and Human Services report statistical series that help us track and understand health.
A complete list of federal government agencies that create health statistics and related data can be found at the Department of Health and Human Services Gateway to Data and Statistics.
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Department of Health and Human Services
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Researchers often begin their searches by focusing on the agencies of the US Department of Health and Human Services because these agencies consider the reporting of statistical series related to health as a part of their core functions.
The following list provides links to principal web locations within the department where statistical data related to health can be located. This list is linked to the main data and statistics website of each agency.
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Page 35 of 40
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Page 36 of 40
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Federal agencies outside of HHS also compile and report statistical data that are used to create health statistics or support analyses of health statistics.
- The Bureau of the Census provides the basic demographic information used for many of the denominators in health statistics. They also report on disability and health insurance coverage.
- The Bureau of Labor Statistics reports data on workplace injuries and safety
- The National Highway Safety Administration reports on accidents that result in injuries.
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State and Local Governments
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Page 37 of 40
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Many state public health departments maintain statistical offices that compile statistical data for their state.
More information about state related health statistics can be found here.
For a list of state agency sites see here.
While each state’s public health statistics are organized differently, key elements of state health data include the following.
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Vital Statistics Registration
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States record vital health events—such as births, death, marriages and divorces. A detailed discussion of vital statistics is included elsewhere in this course.
State health department websites frequently contain special reports of these vital events focusing on providing detailed information for the state and its counties.
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Page 38 of 40
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States participate with the CDC in the conduct of the Behavioral Risk Factor Surveillance System and the Youth Risk Factor surveillance System.
Data for each state can be found on CDC’s website.
Detailed state data from this system is frequently available from the state’s Center for health statistics. See for example how North Carolina features this information.
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Surveillance of Notifiable Conditions
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Public health laws require providers to report cases of certain disorders to their state public health departments.
These include:
- Sexually transmitted diseases and
- Other infectious disorders—such as Tuberculosis, AIDs, Polio, and Mumps
Statistical summaries are published by CDC each week.
State Public health departments also issue periodic summaries of Notifiable conditions.
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Step 5 Assess the Results
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Page 39 of 40
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Once users find material, they should assess its quality and identify sources of uncertainty [error.] Statistical principles are based on the idea that all observation contains uncertainty. Identifying it increases rather than reduces its credibility.
In order to do this, users will need:
- Material about the procedures used to collect the information
- Material that documents its origins and authenticity
- A description of the data collection, compilation and processing methods used by the data creators.
- Measures of uncertainty—i.e. the results of statistical estimates that quantify the likely degree of uncertainty
Many users need to conduct their own assessment of the limits of information they use.
These kinds of users need
- Copies of the original Micro Data Sets. These are frequently released as Public Use Data sets which have been examined to be sure that the identity of the subjects—persons, providers, hospitals and payers cannot be identified.
- Each agency provides detailed information about the availability of its records for analysis. Many allow researchers who promise to protect privacy access under controlled circumstances designed to allow research but at the same time protect subject’s privacy.
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Page 40 of 40
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Summary of the Course
In sum, to meet the challenge of finding health statistics, researchers adopt comprehensive strategies.
These strategies:
- Are molded to fit the specific needs of a particular enquiry
- Are built on an understanding of the institutions that create health statistics and the “natural structure” of statistical work including the organizations that compile and report statistics, the studies they field, the reports they issue and the special Internet resources they present.
Searchers must focus on myriad sources. They need to adopt targeted research strategies that:
- Combine traditional library research with specialized approaches.
- Extends searchers beyond traditional printed material found in books and journals to include electronic publications, files and databases.
- Take advantage of specialized cataloging and
- Are based on an understanding of how health statistics are organized.
13) receive and store library-catalog-generated text messages of call numbers for books and reserve items
— jacqui grallo May 7, 05:48 PM #